Amy Pender, University of Ottawa

Research

Adolescents Adults Clinical Research Core Outcome Set Outcomes Phenylketonuria Rare Disease Transition To Adult Care

Latest funding

Developing and implementing a core outcome set for adolescents and adults with phenylketonuria
CIHR · 2026 · Principal investigator
$539,325
Developing and implementing a core outcome set for adolescents and adults with phenylketonuria
CIHR · 2025 · Principal investigator
$100,000
An innovative registry-based trials platform to improve clinical care, outcomes, and health policy for children with treatable rare diseases
CIHR · 2019 · Co-investigator
$2,754,009

Developing and implementing a core outcome set for adolescents and adults with phenylketonuria

Principal investigatorCIHR2026Project Grant

Principal investigators: Potter, Elizabeth K; Mitchell, John J; Nimmo, Graeme; Pender, Amy; Smith, Maureen M

Keywords: Adolescents; Adults; Clinical Research; Core Outcome Set; Outcomes; Phenylketonuria; Rare Disease; Transition To Adult Care

$539,325

Developing and implementing a core outcome set for adolescents and adults with phenylketonuria

Principal investigatorCIHR2025Project Grant - Priority Announcement: Patient-Oriented Research

Principal investigators: Potter, Elizabeth K; Mitchell, John J; Nimmo, Graeme; Pender, Amy; Smith, Maureen M

Keywords: Adolescents; Adults; Clinical Research; Core Outcome Set; Outcomes; Phenylketonuria; Rare Disease; Transition To Adult Care

$100,000

An innovative registry-based trials platform to improve clinical care, outcomes, and health policy for children with treatable rare diseases

Co-investigatorCIHR2019Operating Grant: SPOR Innovative Clinical Trial Multi-Year Grant

Principal investigators: Potter, Elizabeth K; McCabe, Christopher; Smith, Maureen M; Binik, Ariella; Chakraborty, Pranesh K; Inbar-Feigenberg, Michal; Mitchell, John J; Offringa, Martin; Oskoui, Maryam; Stockler, Sylvia

Keywords: Comparative Effectiveness; Core Outcomes; Genetic Disease; Innovative Clinical Trial; Orphan Therapy; Patient Partnership; Patient-Oriented Outcomes; Pediatrics; Rare Disease; Registry-Based Randomized Trial

$2,754,009

From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.

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Applying for

Mention their CIHR grant from 2026

Subject: Prospective PhD student: Adolescents Dear Professor Pender, My name is [your name], and I am a [your current degree or role] at [your institution]. I am applying for a PhD position starting in [term and year]. Your research on adolescents connects closely to my own work on [your research topic]. [One or two sentences on what you did and what you learned.] I also saw your CIHR-funded project "Developing and implementing a core outcome set for adolescents and adults with phenylketonuria" (2026), and I would be glad to contribute to work in that direction. Are you accepting new PhD students for [term and year]? I have attached my CV and transcripts, and I would be glad to talk at a time that suits you. Thank you for your time. Kind regards, [your name]