Research
Dr. Jan Willem Gorter, MD, PhD, has training in rehabilitation medicine (physiatry) and is the inaugural Chair and Head of Pediatric Rehabilitation at the University Medical Center Utrecht, location Wilhelmina Children's Hospital, and Princess Maxima Center (pediatric oncology) in Utrecht, The Netherlands. He also holds a position as Professor of Pediatrics (Part-Time) at McMaster University in Canada. Jan Willem completed his postdoctoral training at CanChild in 2002, has been appointed a Scientist at CanChild in 2008, and served as CanChild Director (2013-2021). He draws on his clinical experiences to conduct studies and to develop healthcare interventions that will have a direct impact on patients, their families and those working in the healthcare system. Therefore, he is a strong advocate of patient and family engagement in research. To make sure youth with disabilities are on a healthy trajectory, he and his team of clinicians and researchers focus on Physical Health, Family Empowerment, and Cognition (autonomy and adaptive functioning) in children and youth with disabilities. Jan Willem’s goals are to further integrate research and clinical care through a lifecourse health development approach, to ensure optimal outcomes for children with disabilities as they grow up.
Research areas are derived from OpenAlex topics of their publications.
From the 150 most recent of 385 publications.
The family engagement in research course: impact on family engagement in neurodevelopmental disability and child health research two years later
Soper AK, Ali S, Pozniak K, Thomson D, Putterman C, McCauley D, Solomon P, Chambers C, Gorter JW, Cross A
Stimulating inclusive outdoor play: breaking the vicious circle between physical segregation and lack of social acceptance
Visser K, Beekhuizen R, Bloemen M, Gorter JW, van Ramshorst K, Verhoeven F, de Vries R, Wigmans S, Bolster E
Building capacity for leadership in family engagement in neurodevelopmental and child health research: A qualitative evaluation of the Family Engagement in Research Leadership Academy
Soper AK, Micsinszki S, Ali S, Thomson D, Putterman C, Martens R, McCauley D, Phoenix M, Gorter JW, Cross A
Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers
Friedrich S, Willems J, Rodger S, Petropoulos J-A, Ringer D, Wang E, Frei J, Pozniak K, Swain A, Guastafierro E
Cognition in adults with cerebral palsy: A systematic review
Baduni K, Perry B, Warschausky S, Maitre NL, Group TACCPGW
Gastroenterological disorders and hepatic disease in adults with cerebral palsy: A systematic review
Marciniak CM, Ryan JM, Camacho‐Soto A, Capellari E, Burke J, Sofiany M, Post Z, Sung EC, Brown MD, Ryan JM
The assessment of stationary and locomotion physical behavior using a single versus dual wearable accelerometer in children who use a manual wheelchair
Engels B, Bloemen MAT, Felius R, Bolster EAM, Wittink H, Melchers IMS, Engelbert RHH, Gorter JW
Sleep in children with spinal muscular atrophy and their caregivers: Exploring sleep problems and the need for care
van Rijssen IM, Rodenburg S, Alsem M, Hulst R, Gorter JW, Lansink IO, van der Pol L, Veldhoen E, Verschuren O
Can You See Us Play? Observing Inclusive Outdoor Play Behaviour Among Children With and Without Disabilities: A Mixed Methods Study
Beekhuizen RQ, Bloemen MAT, Bolster EAM, Visser K, van der Lugt R, Bassa M, Henry NL, Kotte EMW, van Hartingsveldt M, Gorter JW
Understanding strengths, weaknesses, opportunities, and threats to organizational-level family engagement in two childhood-onset disability research organizations
Micsinszki SK, Cross A, Soper AK, Thomson D, Putterman C, Martens R, McCauley D, Zwicker J, Reynolds JN, Gorter JW
Courses taught
1- Graduate
International Classification of Functioning, Disability, and Health: Theory and Use
REHAB 722 · last taught 2019
Frequent collaborators
68Robert Palisano
Rehabilitation Science
22 shared papers, latest 2024
Patrick Mcphee
Rehabilitation Science
19 shared papers, latest 2024
Brian Timmons
Pediatrics
19 shared papers, latest 2022
Andrea Cross
Pediatrics
18 shared papers, latest 2026
Briano Direzze
Rehabilitation Science
16 shared papers, latest 2024
Ronit Mesterman
Pediatrics
14 shared papers, latest 2026
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Michelle Phoenix
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Matt Freeman
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Wenonah Campbell
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