Faculty profile
Maureen Smith
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Latest papers
The Patient-reported Genetic testing Utility InDEx: A novel measure of personal utility.
Genetics in medicine : official journal of the American College of Medical Genetics · 2026
Correction: The development and usability of 'The Genetics Navigator': a digital solution for adult and paediatric clinical genetics services.
European journal of human genetics : EJHG · 2026
Partnering with patients and the public in the clinical trials ecosystem: a decade of lessons learned and shared.
BMJ open · 2026
Latest funding
- $566,100
Recommendations for the Design, Maintenance, and Utilization of Rare Disease Patient Registries: Guidance for Patient Partners, Clinicians, Researchers, and Other Knowledge Users
CIHR · 2025 · Co-investigator
- $2,200,000
Network for Integrated Care Excellence (NICE) Canada: Transforming Health with Integrated Care Knowledge Mobilization and Impact Hub
CIHR · 2023 · Co-investigator
- $416,925
Update of Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) extensions for network meta-analyses, rapid reviews, and scoping reviews
CIHR · 2023 · Co-investigator
15 publications.
The Patient-reported Genetic testing Utility InDEx: A novel measure of personal utility.
Poole E, Xiao B, Luca S, Assamad D, Abbott LS, Armstrong L, Boycott KM, Carroll JC, Chad L, De Bie I, Denburg A, Deyell RJ, Elliott AM, Goudie C, Laberge AM, Mucha BE, Peltekova IT, Quinlan B, Sawyer SL, Smith M, Villani A, Ungar WJ, Hayeems RZ, P-GUIDE Study Team
Correction: The development and usability of 'The Genetics Navigator': a digital solution for adult and paediatric clinical genetics services.
Saeedi S, Hirjikaka D, Clausen M, Luca S, Reble E, Kodida R, Assamad D, Chad L, Costain G, Faghfoury H, Silver J, Shastri-Estrada S, Smith M, Hayeems RZ, Bombard Y, Genetics Navigator Study Team
Partnering with patients and the public in the clinical trials ecosystem: a decade of lessons learned and shared.
Richards DP, Fink C, Granieri M, Kobow K, Lane T, Lillie D, Mitchell K, Munro C, Smith M, Walz M, Marlin S
A meta-review of patient engagement, shared decision-making, and factors influencing equity-deserving populations' participation in clinical trials.
Morgan TL, Carroll K, Waqar A, Hudek N, Mosa M, Richards DP, Meeking K, Granieri M, Smith M, Walz M, Etherington C, Marlin S, Gillies K, Presseau J, Brehaut JC
Cobuilding patient and public capacity in knowledge synthesis: designed and delivered by patient and public partners for patient and public partners.
Smith M, Gunderson J, Sreetharan S, Chaudhry S, Tam C, Al-Khateeb S, Veroniki AA, Straus SE, Tricco AC, Zarin W
Scoping review authors view knowledge user consultations as beneficial but not without challenges: a qualitative study.
Toomey E, Dabbagh A, Houghton C, O'Connell N, O'Meara C, Pollock D, Smith M, Tricco AC, Colquhoun H
The development and usability of 'The Genetics Navigator': a digital solution for adult and paediatric clinical genetics services.
Saeedi S, Hirjikaka D, Clausen M, Luca S, Reble E, Kodida R, Assamad D, Chad L, Costain G, Faghfoury H, Silver J, Shastri-Estrada S, Smith M, Hayeems RZ, Bombard Y, Genetics Navigator Study Team
Barriers and facilitators to designing, maintaining, and utilizing rare disease patient registries: a scoping review protocol.
Stratton C, Taylor A, Konstantinidis M, McNiven V, Kannu P, Gill P, Stedman I, Veroniki AA, Offringa M, Potter B, Wong-Rieger D, Adams J, Hodgkinson K, Elliott AM, Neville A, Faughnan M, Dyack S, Zhelnov P, Daly-Cyr J, McGowan J, Straus S, Smith M, Rosella L, Tricco AC
Gaps in the Ottawa Statement on the Ethical Design and Conduct of Cluster Randomized Trials: a citation analysis reveals a need for updated ethics guidelines
Goldstein CE, du Toit J, Murphy NB, Nicholls SG, Shaw JF, Althabe F, Binik A, Brehaut J, Eldridge S, Ferrand RA
Genetics Navigator: protocol for a mixed methods randomized controlled trial evaluating a digital platform to deliver genomic services in Canadian pediatric and adult populations.
D'Amours G, Clausen M, Luca S, Reble E, Kodida R, Assamad D, Bernier F, Chad L, Costain G, Dhalla I, Faghfoury H, Friedman JM, Hewson S, Jamieson T, Silver J, Shuman C, Osmond M, Carroll JC, Jobling R, Laberge AM, Aronson M, Liston E, Lerner-Ellis J, Marshall C, Brudno M, Pham Q, Rudzicz F, Cohn R, Mamdani M, Smith M, Shastri-Estrada S, Seto E, Thorpe K, Ungar W, Hayeems RZ, Bombard Y
Recommendations for the Design, Maintenance, and Utilization of Rare Disease Patient Registries: Guidance for Patient Partners, Clinicians, Researchers, and Other Knowledge Users
Principal investigators: Tricco, Andrea C
Keywords: Clinicians; Delphi Process; Guidance Formation; Key-Informant Interviews; Knowledge Users; Patient Partners; Rare Disease; Registries; Researchers; Scoping Review
Network for Integrated Care Excellence (NICE) Canada: Transforming Health with Integrated Care Knowledge Mobilization and Impact Hub
Principal investigators: Wodchis, Walter P; Lewanczuk, Richard Z
Keywords: Implementation Science; Integrated Care; Knowledge Mobilization; Knowledge Translation
Update of Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) extensions for network meta-analyses, rapid reviews, and scoping reviews
Principal investigators: Veroniki, Areti Angeliki; Hutton, Brian E; Stevens, Adrienne L; Tricco, Andrea C
Keywords: Guideline; Network Meta-Analysis; Prisma; Rapid Review; Reporting; Scoping Review; Systematic Review; Transparency
Measuring What Matters: Development and Dissemination of a Core Outcome Set (COS) for Clinical Trials in Pediatric Anxiety Disorders
Principal investigators: Monga, Suneeta; Butcher, Nancy J; Offringa, Martin; Tugwell, Peter S
Keywords: Child And Adolescent Anxiety Disorders; Clinical Trials; Core Outcome Set Development; Delphi Study; Measurement-Based Care; Outcome Selection And Measurement
The Genetics Navigator: A novel digital tool to advance quality and equity in genomic medicine
Principal investigators: Bombard, Yvonne; Hayeems, Robin Z
Keywords: E-Health Tools; Genomics; Patient Facing Health Tools; Personalized Healthcare; Randomized Controlled Trial; User-Centered Design
Development, validation, and implementation of a knowledge synthesis reporting guideline for outcome measurement instruments in health research
Principal investigators: Offringa, Martin; Butcher, Nancy J; Moher, David; Tricco, Andrea C
Keywords: Cosmin Initiative; Knowledge Synthesis; Measurement Properties; Meta-Research; Outcome Measurement Instrument; Prisma Statement; Reporting Guideline; Systematic Reviews
Defining and measuring the value of genetic testing from patients' perspectives: Developing the Patient-reported Genetic testing Utility InDEx (P-GUIDE)
Principal investigators: Hayeems, Robin Z
Keywords: Genomic Medicine; Measurement Science; Patient Reported Outcome Measure
The Genetics Navigator: A novel digital platform for delivering personalized genetic services
Principal investigators: Bombard, Yvonne; Chad, Lauren; Hayeems, Robin Z; Mamdani, Muhammad; Smith, Maureen M
Keywords: Chatbots; Comparative Effectiveness Research; Cost-Effectiveness Analysis; E-Health Tools; Genomic Sequencing; Patient/User Experience; Predictive Algorithms; Qualitative Research; Randomized Controlled Trial; User-Centered Design
The Genetics Navigator: A novel digital tool to advance quality and equity in genomic medicine
Principal investigators: Bombard, Yvonne; Hayeems, Robin Z
Keywords: E-Health Tools; Genomics; Patient Facing Health Tools; Personalized Healthcare; Randomized Controlled Trial; User-Centered Design
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
Frequent collaborators
- Pediatrics
- School of Epidemiology and Public Health
- Institute of Health Policy, Management, and Evaluation
- Medicine
- Epidemiology Division
- Li Ka Shing Knowledge
- Surgery
- Other
Co-authors at University of Toronto, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.
Lauren Chad
Li Ka Shing Knowledge
4 shared papers, latest 2026
Gregory Costain
Faculty
3 shared papers, latest 2026
Martin Offringa
Surgery
3 shared papers, latest 2025
Yvonne Bombard
Institute of Health Policy, Management, and Evaluation
3 shared papers, latest 2026
Pranesh Chakraborty
Pediatrics
3 shared papers, latest 2023
Anne-Marie Laberge
Pediatrics
2 shared papers, latest 2026
Sylvia Stockler
Pediatrics
2 shared papers, latest 2022
Jamie Brehaut
School of Epidemiology and Public Health
2 shared papers, latest 2025
Kathy Speechley
Department of Epidemiology and Biostatistics
2 shared papers, latest 2023
Monica Taljaard
School of Epidemiology and Public Health
2 shared papers, latest 2025
Ariella Binik
Philosophy
2 shared papers, latest 2025
Francois Bernier
Cell Biology and Anatomy
1 shared papers, latest 2024
Ian Stedman
Public Policy
1 shared papers, latest 2025
Eriskay Liston
Faculty
1 shared papers, latest 2024
Ann Jolly
School of Epidemiology and Public Health
1 shared papers, latest 2022
Beth Potter
School of Epidemiology and Public Health
1 shared papers, latest 2025
Jessie McGowan
Faculty
1 shared papers, latest 2025
Cole Etherington
Faculty
1 shared papers, latest 2026
Areti-Angeliki Veroniki
Institute of Health Policy, Management, and Evaluation
1 shared papers, latest 2025
Kevin Thorpe
Surgery
1 shared papers, latest 2024
Jordan Lerner-Ellis
Department of Laboratory Medicine and Pathobiology
1 shared papers, latest 2024
Wendy Ungar
Institute of Health Policy, Management, and Evaluation
1 shared papers, latest 2024
Charles Weijer
Medicine
1 shared papers, latest 2025
Lawrence Mbuagbaw
Health Research Methods, Evidence, and Impact
1 shared papers, latest 2025
Heather Colquhoun
Department of Occupational Science and Occupational Therapy
1 shared papers, latest 2025
Nancy Butcher
Faculty
1 shared papers, latest 2021
Laura Rosella
Centre for Urban Health Solutions
1 shared papers, latest 2025
Justin Presseau
School of Epidemiology and Public Health
1 shared papers, latest 2026
Ronald Cohn
Faculty
1 shared papers, latest 2024
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Profile data last refreshed on July 30, 2025 from the university directory, publication records and CIHR, NSERC and SSHRC funding.