This profile is built from public research funding records (CIHR, NSERC and SSHRC) and PubMed. We have not imported them from a McGill University directory, so their courses and email address may be missing. Find their university profile.
Research
Latest papers
Development of a tool to map SSc pain sources, characteristics and management experiences: the SPIN Pain Assessment Tool.
Rheumatology (Oxford, England) · 2026
Strengthening rheumatology research through meaningful engagement of people with lived experience
The Lancet Rheumatology · 2026
PROTOCOL: Comparative Effectiveness of Tools for Communicating Health Research Results to Study Participants and Others With Relevant Lived Experience: A Living Systematic Review of Randomized Controlled Trials
Campbell Systematic Reviews · 2026 · first author
Latest funding
- $967,726
Course and predictors of patient-reported outcomes from systemic sclerosis onset: A Scleroderma Patient-centered Intervention Network Cohort longitudinal study and individual participant data meta-analysis
CIHR · 2025 · Co-investigator
- $100,000
Advantages and Disadvantages of Methods for Engaging People with Lived Experience in Health Research: An Overview of Systematic Reviews
CIHR · 2025 · Co-investigator
- $72,676
Improving Dissemination of Research Results to Patients: The Scleroderma Patient-centred Intervention Network - Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) Trial
CIHR · 2025 · Co-investigator
23 publications.
Development of a tool to map SSc pain sources, characteristics and management experiences: the SPIN Pain Assessment Tool.
Dal Santo T, Carrier ME, Nassar EL, Dal Santo C, Hu S, Kwakkenbos L, Bartlett SJ, Fox RS, Lee YC, Varga J, Thombs BD, Scleroderma Patient-centered Intervention Network Pain Patient Advisory Team
Strengthening rheumatology research through meaningful engagement of people with lived experience
Adams C, Nassar E-L, Rice DB, Wurz A, Thombs BD, Team SP-CINPEA, Cook V, Gietzen A, Gottesman K, Guillot G
PROTOCOL: Comparative Effectiveness of Tools for Communicating Health Research Results to Study Participants and Others With Relevant Lived Experience: A Living Systematic Review of Randomized Controlled Trials
Nassar E-L, Adams CE, Rice DB, Wurz A, South A, Boruff J, Golberg M, Carrier M-E, Bartlett SJ, Gillies K
Mental Health Symptom Changes by Sex or Gender Before and During the COVID-19 Pandemic
Sung GCY, Wu Y, Fan S, Dal Santo T, González-Domínguez NP, Sun Y, Li L, Li K, Jiang X, Tasleem A
Dissemination of study results to participants in rheumatology research: a meta-research review
Nassar E-L, Pierson G, Adams C, Nassar M, Boruff J, Nordlund J, Santo CD, Rice DB, Thombs-Vite M, Co N
Letter to the editor: "A systematic review of prevalence and predictors of depression in systemic sclerosis based on the CES‑D, BDI, and PHQ-9 self‑assessment questionnaires".
Nassar EL, Thombs BD
Factors associated with eHealth literacy among people with systemic sclerosis: A Scleroderma Patient-centred Intervention Network (SPIN) Cohort cross-sectional study.
Co N, Adams C, Carrier ME, Golberg M, Nassar EL, Kwakkenbos L, Bartlett SJ, Fortuné C, Gietzen A, Guillot G, Lawrie-Jones A, Malcarne VL, Mayes MD, Richard M, Mouthon L, Benedetti A, Thombs BD
Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials
Thombs BD, Adams C, Nassar E-L, Carrier M-E, Golberg M, Bharthi K, Wurz A, South A, Kwakkenbos L, Hoa S
Protocol for a two-arm parallel randomized controlled trial to evaluate patient and researcher co-presentation of research results: the Scleroderma Patient-centered Intervention Network—Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) trial
Nassar E-L, Wurz A, Carrier M-E, Golberg M, Adams C, Kwakkenbos L, Hoa S, Benedetti A, Thombs BD
Dissemination of study results to participants in mental health research: a meta-research review of studies published in high-impact psychiatry journals
Pierson G, Nassar E-L, Adams C, Boruff J, Nordlund J, Hu S, Rice DB, Thombs-Vite M, Co N, Cook V
Course and predictors of patient-reported outcomes from systemic sclerosis onset: A Scleroderma Patient-centered Intervention Network Cohort longitudinal study and individual participant data meta-analysis
Principal investigators: Thombs, Brett D; Bartlett, Susan J; Benedetti, Andrea; Guillot, Geneviève; Kwakkenbos, Linda
Keywords: Individual Participant Data Meta-Analysis; Longitudinal Cohort; Patient Engagement; Patient-Reported Outcomes; Scleroderma; Systemic Sclerosis
Advantages and Disadvantages of Methods for Engaging People with Lived Experience in Health Research: An Overview of Systematic Reviews
Principal investigators: Rice, Danielle B; Thombs, Brett D
Keywords: Applied Health Research; Chronic And Rare Diseases; Evidence Synthesis; Knowledge Translation; Musculoskeletal Diseases; Overview Of Reviews; Patient And Citizen Engagement; Patient-Oriented Research; Scleroderma; Systemic Sclerosis
Improving Dissemination of Research Results to Patients: The Scleroderma Patient-centred Intervention Network - Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) Trial
Principal investigators: Thombs, Brett D; Benedetti, Andrea; Wurz, Amanda J
Keywords: Integrated Knowledge Translation; Knowledge Translation; Patient And Public Engagement; Patient-Oriented Research; Patient-Researcher Co-Presentation; Qualitative Research; Randomized Controlled Trials; Research Dissemination; Scleroderma; Systemic Sclerosis
Enhancing Patient Engagement in Scleroderma Research: A Series of Cohort-Based Randomized Controlled Trials of Tools to Improve Communication of Research Results
Principal investigators: Thombs, Brett D; Hoa, Sabrina A; Lawrie-Jones, Amanda; Rice, Danielle B; Sauve, Maureen
Keywords: Knowledge Translation Tools; Patient And Citizen Engagement; Patient-Oriented Research; Randomized Controlled Trials; Research Dissemination; Systemic Sclerosis And Scleroderma
Engaging Patients in Dissemination: Planning SPIN's Co-Presentation Trial and Scleroderma Research Day
Principal investigators: Thombs, Brett D
Keywords: Co-Presentation; Knowledge Translation; Patient Engagement; Research Dissemination; Scleroderma; Systemic Sclerosis
Towards Understanding Pain Sources, Patterns, and Barriers to Effective Management in Systemic Sclerosis: A Patient-Researcher Partnership
Principal investigators: Thombs, Brett D; Nassar, Elsa-Lynn
Keywords: Assessment; Autoimmune Disease; Connective Tissue Disease; Pain; Patient Engagement; Rare Disease; Scleroderma; Systemic Sclerosis
Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
Principal investigators: Thombs, Brett D; Nassar, Elsa-Lynn
Keywords: Patient Engagement; Patient-Oriented Research; Rare Diseases; Scleroderma; Systemic Sclerosis
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
Frequent collaborators
- Medicine
- Psychiatry
- School of Health Studies
- Department of Epidemiology and Biostatistics
- Psychiatry & Behavioural Neurosciences
- Infectious Diseases
- School of Population and Public Health
- Other
Co-authors at McGill University, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.
Danielle Rice
Psychiatry & Behavioural Neurosciences
13 shared papers, latest 2026
Andrea Benedetti
Infectious Diseases
12 shared papers, latest 2026
Andrea Benedetti
Faculty
11 shared papers, latest 2026
Amanda Wurz
Faculty
6 shared papers, latest 2026
Nader Khalidi
Medicine
4 shared papers, latest 2025
Margaret Larche
Medicine
4 shared papers, latest 2025
Linda Booij
Faculty
3 shared papers, latest 2023
Marie Hudson
Psychiatry
3 shared papers, latest 2025
Linda Booij
Faculty
3 shared papers, latest 2023
Linda Booij
Faculty
3 shared papers, latest 2023
Amanda Wurz
Faculty
2 shared papers, latest 2026
Palak Desai
School of Population and Public Health
1 shared papers, latest 2026
Amédé Gogovor
Faculty
1 shared papers, latest 2024
Sabrina Hoa
Psychiatry
1 shared papers, latest 2025
Vera Granikov
Faculty
1 shared papers, latest 2025
Nancy Maltez
Faculty
1 shared papers, latest 2025
Sabrina Hoa
Medicine
1 shared papers, latest 2025
Lesley Gittings
School of Health Studies
1 shared papers, latest 2024
Christine Cassidy
Faculty
1 shared papers, latest 2024
Merrick Zwarenstein
Department of Epidemiology and Biostatistics
1 shared papers, latest 2025
Anita Kothari
School of Health Studies
1 shared papers, latest 2024
Janet Pope
Department of Epidemiology and Biostatistics
1 shared papers, latest 2025
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