This profile is built from public research funding records (CIHR, NSERC and SSHRC) and PubMed. We have not imported them from a McGill University directory, so their courses and email address may be missing. Find their university profile.
Research
Latest papers
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
Clinical and experimental rheumatology · 2012
Latest funding
- $967,726
Course and predictors of patient-reported outcomes from systemic sclerosis onset: A Scleroderma Patient-centered Intervention Network Cohort longitudinal study and individual participant data meta-analysis
CIHR · 2025 · Co-investigator
- $72,676
Improving Dissemination of Research Results to Patients: The Scleroderma Patient-centred Intervention Network - Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) Trial
CIHR · 2025 · Co-investigator
- $684,675
Enhancing Patient Engagement in Scleroderma Research: A Series of Cohort-Based Randomized Controlled Trials of Tools to Improve Communication of Research Results
CIHR · 2024 · Principal investigator
1 publications.
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
Thombs BD, Jewett LR, Assassi S, Baron M, Bartlett SJ, Maia AC, El-Baalbaki G, Furst DE, Gottesman K, Haythornthwaite JA, Hudson M, Impens A, Korner A, Leite C, Mayes MD, Malcarne VL, Motivala SJ, Mouthon L, Nielson WR, Plante D, Poiraudeau S, Poole JL, Pope J, Sauve M, Steele RJ, Suarez-Almazor ME, Taillefer S, van den Ende CH, Arthurs E, Bassel M, Delisle V, Milette K, Leavens A, Razykov I, Khanna D
Course and predictors of patient-reported outcomes from systemic sclerosis onset: A Scleroderma Patient-centered Intervention Network Cohort longitudinal study and individual participant data meta-analysis
Principal investigators: Thombs, Brett D; Bartlett, Susan J; Benedetti, Andrea; Guillot, Geneviève; Kwakkenbos, Linda
Keywords: Individual Participant Data Meta-Analysis; Longitudinal Cohort; Patient Engagement; Patient-Reported Outcomes; Scleroderma; Systemic Sclerosis
Improving Dissemination of Research Results to Patients: The Scleroderma Patient-centred Intervention Network - Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) Trial
Principal investigators: Thombs, Brett D; Benedetti, Andrea; Wurz, Amanda J
Keywords: Integrated Knowledge Translation; Knowledge Translation; Patient And Public Engagement; Patient-Oriented Research; Patient-Researcher Co-Presentation; Qualitative Research; Randomized Controlled Trials; Research Dissemination; Scleroderma; Systemic Sclerosis
Enhancing Patient Engagement in Scleroderma Research: A Series of Cohort-Based Randomized Controlled Trials of Tools to Improve Communication of Research Results
Principal investigators: Thombs, Brett D; Hoa, Sabrina A; Lawrie-Jones, Amanda; Rice, Danielle B; Sauve, Maureen
Keywords: Knowledge Translation Tools; Patient And Citizen Engagement; Patient-Oriented Research; Randomized Controlled Trials; Research Dissemination; Systemic Sclerosis And Scleroderma
Engaging Patients to Plan the Next 10 Years of the Scleroderma Patient-centered Intervention Network (SPIN): Building on a Successful Patient-Researcher Collaboration
Principal investigators: Thombs, Brett D; Sauve, Maureen
Keywords: Chronic Disease; Dissemination; E-Health Interventions; Knowledge Translation; Patient Engagement; Rare Disease; Scleroderma; Stakeholder Collaboration; Systemic Sclerosis
Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
Principal investigators: Thombs, Brett D; Nassar, Elsa-Lynn
Keywords: Patient Engagement; Patient-Oriented Research; Rare Diseases; Scleroderma; Systemic Sclerosis
Identification of Factors to Improve Effectiveness and Implementation of a Multi-faceted COVID-19 Mental Health Intervention: Follow-up to the SPIN-CHAT Trial
Principal investigators: Thombs, Brett D; Benedetti, Andrea; Culos-Reed, S.Nicole; Kwakkenbos, Linda
Keywords: Anxiety; Covid-19; Inductive-Deductive Approach; Mental Health; Multiple Perspectives; Pre-Existing Conditions; Qualitative Inquiry; Randomized Controlled Trial; Scleroderma; Vulnerable Population
Establishing Next Steps for SPIN-SHARE: An International Collaboration to Disseminate eHealth Disease-Management Tools for People Living with Scleroderma
Principal investigators: Thombs, Brett D; Sauve, Maureen
Keywords: Chronic Disease; Dissemination; E-Health Interventions; Healthcare Delivery; Knowledge Translation; Patient Engagement; Rare Disease; Scleroderma; Stakeholder Collaboration; Systemic Sclerosis
The Scleroderma Support group Leader EDucation (SPIN-SSLED) Program: a randomized controlled trial
Principal investigators: Thombs, Brett D
Keywords: Integrated Knowledge Transfer; Patient Education; Peer Support; Randomized Controlled Trial; Rare Diseases; Scleroderma; Support Groups; Systemic Sclerosis
Dissemination of the CONsolidated Standards of Reporting Trials (CONSORT) statement for randomized controlled trails (RCTs) using cohorts and routinely collected health data
Principal investigators: Thombs, Brett D; Kwakkenbos, Linda
Keywords: Cohorts; Consort; Embedded Trials; Reporting Guidelines; Routinely Collected Health Data
Feasibility Trial of the Scleroderma Patient-centered Intervention Network COping with Appearance CHanges (SPIN-COACH) Program: Delivering Accessible and Tailored Mental Health Services to People Living with a Rare Disease
Principal investigators: Thombs, Brett D; Hudson, Marie; Kmiec, Tom; Sauve, Maureen; Kwakkenbos, Linda; Malcarne, Vanessa
Keywords: Appearance; Body Image; Cognitive Behavioural Therapy; Ehealth; Implementation Science; Patient-Centered; Psychosocial; Scleroderma; Social Skills; Systemic Sclerosis
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
Frequent collaborators
- Psychiatry
- Educational and Counselling Psychology
- Rheumatology
Co-authors at McGill University, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.
Luc Mouthon
Psychiatry
1 shared papers, latest 2012
Serge Poiraudeau
Psychiatry
1 shared papers, latest 2012
Ghassan El-Baalbaki
Psychiatry
1 shared papers, latest 2012
Marie Hudson
Psychiatry
1 shared papers, latest 2012
Murray Baron
Rheumatology
1 shared papers, latest 2012
Annett Korner
Educational and Counselling Psychology
1 shared papers, latest 2012
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