This profile is built from public research funding records (CIHR, NSERC and SSHRC) and PubMed. We have not imported them from a University of Calgary directory, so their courses and email address may be missing. Find their university profile.
Research
Latest papers
Effect of Isolation On Mental Health Profiles of Caregivers of Children with Medical Complexity: A Mixed Methods Embedded Case Study.
International journal of pediatrics · 2026
Understanding strengths, weaknesses, opportunities, and threats to organizational-level family engagement in two childhood-onset disability research organizations
Research Involvement and Engagement · 2026
Building capacity for leadership in family engagement in neurodevelopmental disability and child health research: A qualitative evaluation of the Family Engagement in Research Leadership Academy
Research Involvement and Engagement · 2026
Latest funding
- $1,598,238
RAre Disease Administrative Data Research (RADAR) Team: putting the health system impact of rare diseases on the radar
CIHR · 2023 · Co-investigator
- $23,267
Harnessing Family Expertise and Experiences to Guide Inpatient Care for Children with Medical Complexity
CIHR · 2023 · Co-investigator
- $149,847
CHILD: Canadian Health Indicators for chiLdren with Disabilities
CIHR · 2022 · Co-investigator
7 publications.
Effect of Isolation On Mental Health Profiles of Caregivers of Children with Medical Complexity: A Mixed Methods Embedded Case Study.
Fayed N, Nathwani AA, Martens R, Cohen E
Understanding strengths, weaknesses, opportunities, and threats to organizational-level family engagement in two childhood-onset disability research organizations
Micsinszki SK, Cross A, Soper AK, Thomson D, Putterman C, Martens R, McCauley D, Zwicker J, Reynolds JN, Gorter JW
Building capacity for leadership in family engagement in neurodevelopmental disability and child health research: A qualitative evaluation of the Family Engagement in Research Leadership Academy
Soper AK, Micsinszki S, Ali S, Thomson D, Putterman C, Martens R, McCauley D, Phoenix M, Gorter JW, Cross A
Trust of inpatient physicians among parents of children with medical complexity: a qualitative study.
Dewan T, Whiteley A, MacKay LJ, Martens R, Noel M, Barnard C, Jordan I, Janvier A, Thorne S
Development, implementation, and scalability of the Family Engagement in Research Course: a novel online course for family partners and researchers in neurodevelopmental disability and child health
Cross A, Soper AK, Thomson D, Putterman C, McCauley D, Micsinszki SK, Martens R, Solomon P, Carter L, Reynolds JN
How Did Governments Address the Needs of People With Disabilities During the COVID-19 Pandemic? An Analysis of 14 Countries' Policies Based on the UN Convention on the Rights of Persons With Disabilities.
Shikako K, Lencucha R, Hunt M, Jodoin S, Elsabbagh M, Hudon A, Cogburn D, Chandra A, Gignac-Eddy A, Ananthamoorthy N, Martens R
Don't tell me, show me: Reactions from those with lived experience to the 2020 revised IASP definition of pain.
Jordan I, Martens R, Birnie KA
RAre Disease Administrative Data Research (RADAR) Team: putting the health system impact of rare diseases on the radar
Principal investigators: Marshall, Deborah A; Baribeau, Danielle A; Bernier, Francois P; Stedman, Ian
Keywords: Administrative Data; Rare Disease
Harnessing Family Expertise and Experiences to Guide Inpatient Care for Children with Medical Complexity
Principal investigators: Dewan, Tammie
Keywords: Children With Medical Complexity; Co-Design; Experience Of Care; Interpretive Description; Patient And Family Engagement
CHILD: Canadian Health Indicators for chiLdren with Disabilities
Principal investigators: Shikako, Keiko
Keywords: Children With Disabilities; Data Gaps; Indicators; Quality Of Life; Social Determinants Of Health; Well-Being
Nothing without us: Towards inclusive, equitable policy strategies for youth with disabilities and their families post-COVID19
Principal investigators: Zwicker, Jennifer D; Lai, Jonathan; Martens, Rachel E; Shikako, Keiko
Keywords: Caregiving; Disability Inclusive Response; Equity; Families Of And Individuals With Disabilities; Mental Health Of Youth, Caregivers And Families; Policy Responses
ENAbling VISions And Growing Expectations for Service Providers (ENVISAGE-SP): Creating opportunities to change how service providers think, talk about, and approach childhood disability in the 21st century
Principal investigators: Rosenbaum, Peter L; Hesketh, Kim; Martens, Rachel E; Miller, Laura
Keywords: Behaviour Change; F-Words In Child Development; Family Well-Being; Family-Centred Service; Family-Service Provider Collaboration; Icf; Integrated Knowledge Translation; Modern Concepts In Childhood Disability; Pediatric Service Providers; Service Provider Knowledge And Skills
Measure of Processes of Care 2.0 - Towards the new gold standard in measuring family-centred service
Principal investigators: Rosenbaum, Peter L; King, Gillian A; Putterman, Constance B
Keywords: Caregiver Experience; Childhood Disability; Family-Centred Service; Health Services; Integrated Knowledge Translation; Measure Of Processes Of Care; Patient-Oriented Research
ACCESS: Assessing the Continuum of Care and Eligibility for Services and Supports for Children with Neurodevelopmental Disabilities and their Families
Principal investigators: Zwicker, Jennifer D; Dimitropoulos, Gina; Tough, Suzanne C
Keywords: Developmental Disability; Health And Social Services; Service Utilization; Transitions; Vulnerable Populations
Nothing without us: Towards inclusive, equitable COVID-19 policy responses for youth with disabilities and their families
Principal investigators: Zwicker, Jennifer D; Lai, Jonathan; Martens, Rachel E; Nicholas, David B; Shikako, Keiko
Keywords: Caregiving; Disability Inclusive Emergency Response; Equity; Families Of And Individuals With Disabilities; Families, Children, Youth; Mental Health; Policy Responses
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
Frequent collaborators
- Pediatrics
- Rehabilitation Science
- School of Physical and Occupational Therapy
- Medicine
- Occupational and Physical Therapy
- School of Nursing
- Other
Co-authors at University of Calgary, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.
Jan Willem Gorter
Pediatrics
3 shared papers, latest 2026
Andrea Cross
Pediatrics
3 shared papers, latest 2026
Michelle Phoenix
Rehabilitation Science
2 shared papers, latest 2026
Anne Hudon
Faculty
1 shared papers, latest 2023
Tammie Dewan
Pediatrics
1 shared papers, latest 2024
Mayada Elsabbagh
Faculty
1 shared papers, latest 2023
Matthew Hunt
Occupational and Physical Therapy
1 shared papers, latest 2023
Sally Thorne
School of Nursing
1 shared papers, latest 2024
Keiko Shikako
School of Physical and Occupational Therapy
1 shared papers, latest 2023
Raphael Lencucha
School of Physical and Occupational Therapy
1 shared papers, latest 2023
Jennifer Zwicker
Pediatrics
1 shared papers, latest 2026
Patricia Solomon
Rehabilitation Science
1 shared papers, latest 2024
Melanie Noel
Faculty
1 shared papers, latest 2024
Olaf Kraus De Camargo
Pediatrics
1 shared papers, latest 2024
Eyal Cohen
Medicine
1 shared papers, latest 2026
A short, specific email works best. This draft uses one of their recent papers; replace the parts in brackets with your own details before sending.