This profile is built from public research funding records (CIHR, NSERC and SSHRC) and PubMed. We have not imported them from a University of Ottawa directory, so their courses and email address may be missing. Find their university profile.
Research
Latest papers
Building capacity for patient-engagement in neuromuscular disease research: A network project.
Journal of neuromuscular diseases · 2026 · senior author
Latest funding
- $1,000,000
NMD4C: the neuromuscular network for Canada
CIHR · 2023 · Principal investigator
- $1,597,256
Real-World Evidence for Canadian Neuromuscular Disease: Establishing a Framework for National Integration of Patient Reported Outcomes, Clinical Registry Data, Healthcare Utilization and Healthcare Associated Costs
CIHR · 2023 · Co-investigator
- $444,274
Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy
CIHR · 2022 · Co-investigator
1 publications.
Building capacity for patient-engagement in neuromuscular disease research: A network project.
Mortenson P, Osman H, Beattie E, Kagan C, Larocca V, Maltais C, Niksic L, Thompson M, Selby K
NMD4C: the neuromuscular network for Canada
Principal investigators: Lochmüller, Hanns; Osman, Homira; Brais, Bernard; Campbell, Craig Gordon N; Chang, Natasha C; Dowling, James; Gagnon, Cynthia; Gonorazky, Hernan D; Hodgkinson, Victoria; Karamchandani, Jason; Korngut, Lawrence W; Kothary, Rashmi K; Mah, Jean K; O'Connell, Colleen; Patten, Kessen; Rossi, Fabio M; Schellenberg, Kerri; Selby, Kathryn A; Warman Chardon, Jodi
Keywords: Clinical Trial Networks; Networks; Neuromuscular Disease; Open Science; Patient Partnerships; Preclinical Research Resources; Training And Education; Translational Research
Real-World Evidence for Canadian Neuromuscular Disease: Establishing a Framework for National Integration of Patient Reported Outcomes, Clinical Registry Data, Healthcare Utilization and Healthcare Associated Costs
Principal investigators: Amin, Reshma; Osman, Homira; Cohen, Eyal; Hodgkinson, Victoria; Jewett, Gordon; Lochmüller, Hanns
Keywords: Health Services Research; Healthcare Service Utilization; Neuromuscular Disease; Registry
Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy
Principal investigators: Oskoui, Maryam; Smith, Maureen M; Evans, Alan C; Iturria Medina, Yasser; Levac, Danielle E; Potter, Elizabeth K
Keywords: Exergaming; Pragmatic Randomized Controlled Trial; Rare Disease; Registry-Based Trial; Rehabilitation; Spinal Muscular Atrophy; Wearable Technology
Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy
Principal investigators: Oskoui, Maryam; Smith, Maureen M; Evans, Alan C; Iturria Medina, Yasser; Levac, Danielle E; Potter, Elizabeth K
Keywords: Exergaming; Pragmatic Randomized Controlled Trial; Rare Disease; Registry-Based Trial; Rehabilitation; Spinal Muscular Atrophy; Wearable Technology
NMD4C: An integrated research network for patients, scientists, and clinicians to improve outcomes and access to therapies for patients with neuromuscular disorders in Canada.
Principal investigators: Lochmüller, Hanns; Buffone, Teresa; Dowling, James; Warman Chardon, Jodi
Keywords: Genomics; Knowledge Translation; Networks; Neuromuscular Disease; Patient Engagement; Translational Research
An innovative registry-based trials platform to improve clinical care, outcomes, and health policy for children with treatable rare diseases
Principal investigators: Potter, Elizabeth K; McCabe, Christopher; Smith, Maureen M; Binik, Ariella; Chakraborty, Pranesh K; Inbar-Feigenberg, Michal; Mitchell, John J; Offringa, Martin; Oskoui, Maryam; Stockler, Sylvia
Keywords: Comparative Effectiveness; Core Outcomes; Genetic Disease; Innovative Clinical Trial; Orphan Therapy; Patient Partnership; Patient-Oriented Outcomes; Pediatrics; Rare Disease; Registry-Based Randomized Trial
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
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