This profile is built from public research funding records (CIHR, NSERC and SSHRC) and PubMed. We have not imported them from a University of Toronto directory, so their courses and email address may be missing. Find their university profile.
Latest papers
Gaps and Challenges in the Transition of Care in Neuromuscular Disorders With a Focus on Duchenne Muscular Dystrophy
Pediatric Neurology · 2026
Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers
Frontiers in Public Health · 2026
Conference proceedings from the Western Canadian Neuromuscular Conference (WCNMC) - September 27-29, 2024, Calgary, Canada.
Journal of neuromuscular diseases · 2026
Latest funding
- $1,597,256
Real-World Evidence for Canadian Neuromuscular Disease: Establishing a Framework for National Integration of Patient Reported Outcomes, Clinical Registry Data, Healthcare Utilization and Healthcare Associated Costs
CIHR · 2023 · Principal investigator
15 publications.
Gaps and Challenges in the Transition of Care in Neuromuscular Disorders With a Focus on Duchenne Muscular Dystrophy
Marcassoli A, Rajapakse N, Guastafierro E, Petropoulos J-A, Trucco G, Mazzilli A, Friedrich S, Rodger S, Willems J, Ringer D
Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers
Friedrich S, Willems J, Rodger S, Petropoulos J-A, Ringer D, Wang E, Frei J, Pozniak K, Swain A, Guastafierro E
Conference proceedings from the Western Canadian Neuromuscular Conference (WCNMC) - September 27-29, 2024, Calgary, Canada.
Jewett G, Luk C, Osman H, Pfeffer G
Exploring the impact of myotonia on daily functioning in myotonic dystrophy: a patient-reported survey.
Sansone VA, Dang UJ, Edmondson L, Díaz-Manera J, Nikolenko N, Ashley EJ, Bassez G, Gagnon C, Montagnese F, Osman H, Tard C, Nowak U, Turner C, Zozulya-Weidenfeller A
Advancing neuromuscular disease research through real-world data: Challenges and lessons learned.
Munn JS, Cohen E, Hodgkinson V, Lochmüller H, Osman H, Jewett G, Amin R
Implementation of a neuromuscular clinical trial network: a rare disease model for enhancing clinical trial readiness, capacity, and access in Canada.
Schellenberg KL, Osman H, Masnata M, Hicks R, Kagan C, Stosic A, Lintern S, Beattie E, Lochmuller H, Campbell C, Mah JK
Building capacity for patient-engagement in neuromuscular disease research: A network project.
Mortenson P, Osman H, Beattie E, Kagan C, Larocca V, Maltais C, Niksic L, Thompson M, Selby K
Strengthening clinical capacity in spinal muscular atrophy: Developing and implementing training on clinical outcome assessments.
Osman H, Masnata M, Adamji Z, Rodrigue X, Nguyen CÉ, Slayter J, Beattie E, Lintern S, Lochmuller H, O'Connell C, Gagnon C, Warman-Chardon J
2nd NMD4C basic research summer school on promoting standardized protocols to advance translational research in neuromuscular disorders.
Rihoux A, Sutton E, Lee J, Flewwelling L, Garibotti M, Osman H, Cheng A, Scimè A, G R Perry C, Patten K, Chang N, Kothary R, Leduc-Gaudet JP
Counting the Cost: The Hidden Financial Realities of Neuromuscular Disease Through Patient and Family Perspectives.
Osman H, Adamji Z, Lintern S, Smith IC, Grant A, Lessard LER, Lochmuller H, McMillan H, Selby K, Pfeffer G, Korngut L, Gagnon C, Thavorn K, Warman-Chardon J
Real-World Evidence for Canadian Neuromuscular Disease: Establishing a Framework for National Integration of Patient Reported Outcomes, Clinical Registry Data, Healthcare Utilization and Healthcare Associated Costs
Principal investigators: Amin, Reshma; Osman, Homira; Cohen, Eyal; Hodgkinson, Victoria; Jewett, Gordon; Lochmüller, Hanns
Keywords: Health Services Research; Healthcare Service Utilization; Neuromuscular Disease; Registry
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
Frequent collaborators
- Kednapa Thavorn and Kednapa Thavorn: 312 shared papers
- Cynthia Gagnon and Cynthia Gagnon: 93 shared papers
- Eyal Cohen and Reshma Amin: 11 shared papers
- Olaf Kraus De Camargo and Jan Willem Gorter: 8 shared papers
- Lawrence Korngut and Craig Campbell: 8 shared papers
- Jodi Warman Chardon and Gerald Pfeffer: 8 shared papers
- Lawrence Korngut and Gerald Pfeffer: 7 shared papers
- Rashmi Kothary and Jodi Warman Chardon: 6 shared papers
- Lawrence Korngut and Jodi Warman Chardon: 6 shared papers
- Hanns Lochmüller and Jodi Warman Chardon: 6 shared papers
- Hanns Lochmüller and Homira Osman: 5 shared papers
- Jodi Warman Chardon and Homira Osman: 5 shared papers
- Gerald Pfeffer and Homira Osman: 5 shared papers
- Homira Osman and Homira Osman: 5 shared papers
- Craig Campbell and Craig Campbell: 5 shared papers
- Lawrence Korngut and Hanns Lochmüller: 4 shared papers
- Kednapa Thavorn and Hanns Lochmüller: 4 shared papers
- Kednapa Thavorn and Jodi Warman Chardon: 4 shared papers
- Cynthia Gagnon and Hanns Lochmüller: 4 shared papers
- Cynthia Gagnon and Jodi Warman Chardon: 4 shared papers
- Cynthia Gagnon and Homira Osman: 4 shared papers
- Hanns Lochmüller and Kednapa Thavorn: 4 shared papers
- Jodi Warman Chardon and Kednapa Thavorn: 4 shared papers
- Jan Willem Gorter and Anne Fournier: 3 shared papers
- Jan Willem Gorter and Craig Campbell: 3 shared papers
- Lawrence Korngut and Homira Osman: 3 shared papers
- Kednapa Thavorn and Homira Osman: 3 shared papers
- Kednapa Thavorn and Homira Osman: 3 shared papers
- Olaf Kraus De Camargo and Homira Osman: 2 shared papers
- Gerald Pfeffer and Homira Osman: 2 shared papers
- Cynthia Gagnon and Homira Osman: 2 shared papers
- Olaf Kraus De Camargo and Eyal Cohen: 1 shared paper
- Olaf Kraus De Camargo and Anne Fournier: 1 shared paper
- Jan Willem Gorter and Eyal Cohen: 1 shared paper
- Jan Willem Gorter and Homira Osman: 1 shared paper
- Eyal Cohen and Homira Osman: 1 shared paper
- Eyal Cohen and Homira Osman: 1 shared paper
- Rashmi Kothary and Natasha Chang: 1 shared paper
- Rashmi Kothary and Homira Osman: 1 shared paper
- Anne Fournier and Homira Osman: 1 shared paper
- Cynthia Gagnon and Reshma Amin: 1 shared paper
- Hanns Lochmüller and Cynthia Gagnon: 1 shared paper
- Hanns Lochmüller and Craig Campbell: 1 shared paper
- Reshma Amin and Cynthia Gagnon: 1 shared paper
- Reshma Amin and Homira Osman: 1 shared paper
- Natasha Chang and Homira Osman: 1 shared paper
- Homira Osman and Craig Campbell: 1 shared paper
- Homira Osman and Kathryn Selby: 1 shared paper
- Craig Campbell and Homira Osman: 1 shared paper
- Kathryn Selby and Homira Osman: 1 shared paper
- Homira Osman and Craig Campbell: 1 shared paper
- Clinical Neurosciences
- Pediatrics
- Department of Medicine
- Ecole de réadaptation
- School of Epidemiology and Public Health
- Department of Epidemiology and Biostatistics
- Medicine
- Other
Co-authors at University of Toronto, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.
Jodi Warman Chardon
Department of Medicine
5 shared papers, latest 2026
Gerald Pfeffer
Clinical Neurosciences
5 shared papers, latest 2026
Homira Osman
Faculty
5 shared papers, latest 2026
Hanns Lochmüller
Faculty
5 shared papers, latest 2026
Cynthia Gagnon
Ecole de réadaptation
4 shared papers, latest 2026
Kednapa Thavorn
School of Epidemiology and Public Health
3 shared papers, latest 2025
Kednapa Thavorn
Faculty
3 shared papers, latest 2025
Lawrence Korngut
Clinical Neurosciences
3 shared papers, latest 2025
Cynthia Gagnon
Faculty
2 shared papers, latest 2026
Olaf Kraus De Camargo
Pediatrics
2 shared papers, latest 2026
Craig Campbell
Department of Epidemiology and Biostatistics
1 shared papers, latest 2026
Kathryn Selby
Faculty
1 shared papers, latest 2026
Jan Willem Gorter
Pediatrics
1 shared papers, latest 2026
Eyal Cohen
Medicine
1 shared papers, latest 2026
Rashmi Kothary
Cellular and Molecular Medicine
1 shared papers, latest 2026
Anne Fournier
Faculty
1 shared papers, latest 2026
Reshma Amin
Faculty
1 shared papers, latest 2026
Natasha Chang
Biochemistry
1 shared papers, latest 2026
Craig Campbell
Faculty
1 shared papers, latest 2026
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