Faculty profile

Alene Toulany

ResearcherPediatricsUniversity of Toronto

This profile is built from public research funding records (CIHR, NSERC and SSHRC) and PubMed. We have not imported them from a University of Toronto directory, so their courses and email address may be missing. Find their university profile.

Alene Toulany

Researcher

Pediatrics

Health Sciences

University of Toronto

Toronto, Ontario, Canada

Supervision signals

Has led research grants, which requires an independent research appointment. Ask their department whether they supervise graduate students.
62 publications in the last five years, latest in 2026.
Senior (last) author on 18 recent papers, a sign of leading a research group.
Principal investigator on 8 research grants (7 CIHR, 1 SSHRC), most recently in 2024.
Supervisor on 3 trainee awards (3 CIHR), most recently in 2026.

These signals come from public records, including CIHR, NSERC and SSHRC funding decisions. Ask the professor or the graduate program whether they are taking new students.

Academic metrics

Publications

150

Citations

117

Collaborators

Grants

Publications by year

Counts cover the publications linked to this profile. Citations and the h-index appear when the source records them.

Profiles and links

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Signals and details

Research

Youth Adolescent Inequities Mental Health Pediatrics Frameworks Models Patient Engagement

Latest papers

A Systematic Review of the Content Validity of Self-Management Outcome Measurement Instruments for Youth With Multiple Sclerosis Transitioning to Adult Care
Journal of Adolescent Health · 2026
Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families
Child: Care, Health and Development · 2026
Maternal attention deficit hyperactivity disorder and adverse obstetrical and perinatal outcomes: A population-based cohort study in Ontario, Canada.
American journal of obstetrics & gynecology MFM · 2026

All 84 publications

Latest funding

Evaluation of Ontario’s School Cell Phone Ban on Youth Mental Health
CIHR · 2026 · Supervisor
$140,000
Characterizing trends in mental health care utilization among adolescents with obesity
CIHR · 2025 · Supervisor
$140,000
CANLINK: Partnering to Establish a National Pediatric Learning Health System Network to Advance Youth and Family Patient-Centered Measurement
CIHR · 2025 · Co-investigator
$149,971

All 28 grants and awards

84 publications.

A Systematic Review of the Content Validity of Self-Management Outcome Measurement Instruments for Youth With Multiple Sclerosis Transitioning to Adult Care

Sawicka KM, Lee YK, Traubici B, Teshler L, Lindale K, Xia E, Cunningham J, Beyene J, Finlayson M, Toulany A

Journal of Adolescent Health20261 citations

DOI: 10.1016/j.jadohealth.2025.12.262

Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families

Li L, Gorter JW, Cook K, Toulany A, Robeson P, Geboers J, Kassam‐Lallani D, Grahovac D, Bogossian A, Rojas RG

Child: Care, Health and Development2026

DOI: 10.1111/cch.70294

Maternal attention deficit hyperactivity disorder and adverse obstetrical and perinatal outcomes: A population-based cohort study in Ontario, Canada.

Zipursky JS, Vigod SN, Babujee A, Barker LC, Bolea-Alamanac B, Clark CT, Cohen E, Dennis CL, Gomes T, Lu H, Maxwell C, Patrikar A, Ray JG, Saunders N, Toulany A, Xie A, Brown HK

American journal of obstetrics & gynecology MFM2026

DOI: 10.1016/j.ajogmf.2026.101969 PMID: 41990995

Attention-deficit hyperactivity disorder and perinatal mental illness: a population-based study.

Vigod SN, Zipursky J, Babujee A, Barker LC, Bolea-Alamanac B, Clark CT, Cohen E, Dennis CL, Feldman M, Gomes T, Habib S, Lu H, Maxwell C, Patrikar A, Ray JG, Saunders N, Toulany A, Xie A, Brown HK

Social psychiatry and psychiatric epidemiology2026

DOI: 10.1007/s00127-026-03206-0 PMID: 42663665

CMC-ID: identifying children and youth with medical complexity using an electronic health record.

Santos S, Bruno-Boucher L, Benjamin H, Arenas-Rodriguez B, Soscia J, Colapinto K, Miranda S, Nelson K, Orkin J, Gill PJ, Toulany A, Yi M, Sung L, Cohen E

BMJ health & care informatics2026

DOI: 10.1136/bmjhci-2026-102268 PMID: 42618289

Knowledge Translation Interventions for Youth Health Care Transitions: Protocol for a Realist Review.

MacIntyre G, Flynn R, Birnie KA, Boulos L, Gallant SM, Graham ID, Grant A, Gray M, Harvey G, Higgins A, Hilario CT, Kontak JC, McNeil DA, Munce S, Pidduck J, Scott SD, Toulany A, Cassidy CE

JMIR research protocols2026

DOI: 10.2196/99731 PMID: 42456012

Screens and Teens: A youth participatory action research approach to developing a survey to assess sexual health risks in the digital age.

Vandermorris A, Khan N, Lijiam S, Tam M, Mazin WB, Begun S, Wigle J, Arafeh D, Skelding J, Carsley S, Keown-Stoneman C, Maguire JL, Birken CS, Toulany A

Canadian journal of public health = Revue canadienne de sante publique2026Senior author

DOI: 10.17269/s41997-026-01185-y PMID: 41954884

CONSORT-Children and Adolescents (CONSORT-C) 2026 extension statement: enhancing the reporting and impact of paediatric randomised trials.

Baba A, Smith M, Potter BK, Chan AW, Moher D, Toulany A, Doherty-Kirby A, Nafria Escalera B, Stratton C, Gale C, Macarthur C, Purper-Ouakil D, Juszczak E, Cohen E, Reggiardo G, Preston J, Cohen JF, Upton J, Allegaert K, Boerner K, Mehta K, Nguyen KA, Courtney K, Hartling L, Konstantinidis M, Odermarsky M, Butcher NJ, Kolehmainen N, Longmuir PE, Gill PJ, Leroy P, Feneberg R, Poluru R, Morris SK, Friedrichsdorf SJ, Chute Nagy T, Klassen TP, Lacaze-Masmonteil T, Onland W, Offringa M

The Lancet. Child & adolescent health2026

DOI: 10.1016/s2352-4642(26)00004-0 PMID: 42283643

SPIRIT-Children and Adolescents (SPIRIT-C) 2026 extension statement: enhancing the reporting and usefulness of paediatric randomised trial protocols.

The Lancet. Child & adolescent health2026

DOI: 10.1016/s2352-4642(26)00005-2 PMID: 42283642

CONSORT-Children and Adolescents (CONSORT-C) 2026 Extension Statement: Enhancing the Reporting and Impact of Pediatric Randomized Trials.

JAMA pediatrics2026

DOI: 10.1001/jamapediatrics.2026.0104 PMID: 41734893

Evaluation of Ontario’s School Cell Phone Ban on Youth Mental Health

SupervisorCIHR2026Fellowship: Canada Impact+ Research Training Awards - Postdoctoral

Principal investigators: Jenkins, Marina

Keywords: Health Policy; Health Service Research; Population Health; Youth Equity; Youth Mental Health

$140,000

Characterizing trends in mental health care utilization among adolescents with obesity

SupervisorCIHR2025Canada Postdoctoral Research Award (CPRA) program

Principal investigators: London-Nadeau, Kira

Keywords: Administrative Health Data; Adolescent Obesity; Anxiety; Depression; Eating Disorders; Health Services; Mental Health; Mental Health Care Utilization; Self-Harm

$140,000

CANLINK: Partnering to Establish a National Pediatric Learning Health System Network to Advance Youth and Family Patient-Centered Measurement

Co-investigatorCIHR2025Catalyst Grant: Partnering for Impact - Strategy for Patient-Oriented Research

Principal investigators: Munce, Sarah E; Vanderhout, Shelley

Keywords: Co-Production; Consensus; Implementation Science; Integrated Knowledge Translation; Knowledge Mobilization; Knowledge Synthesis; Modified Delphi; Patient-Reported Experience Measures; Patient-Reported Outcome Measures; Spor

$149,971

A Youth-Engaged Community of Practice to Improve Readiness to Transition to Adult Type 1 Diabetes Care

Co-investigatorCIHR2025Team Grant: Healthy Youth

Principal investigators: Shulman, Rayzel; Ivers, Noah M; McCleary, Nicola; Zenlea, Ian S

Keywords: Adolescents; Co-Design; Community Of Practice; Diabetes; Quality Improvement; Transition To Adult Care; Young Adults; Youth

$1,500,000

Health Outcomes of Transition-Age Youth with Physical-Mental Comorbidity: A mixed methods study

SupervisorCIHR2025DRA : Canada Graduate Research Scholarship - Doctoral Program (CGRS D)

Principal investigators: Yeung, Sharon

Keywords: Clinical Epidemiology; Mental Health; Mixed Methods; Physical-Mental Comorbidity; Population Health; Psychiatry; Transition Age Youth

$120,000

Multimorbidity in Children and Youth Across the Life-course (MY LIFE): A Long-term Follow-up

Co-investigatorCIHR2024Project Grant

Principal investigators: Ferro, Mark

Keywords: Child; Comorbidity/Multimorbidity; Mental Illness; Physical Illness; Prospective Study; Trajectory Modelling; Young Adult; Youth

$1,272,196

Mapping the Journey for Youth Transitioning to Adult Care

Principal investigatorSSHRC2024Insight Grants

Principal investigators: Toulany, Alene

Keywords: youth; transition to adult care; photovoice; journey mapping; art-based research; interdisciplinary

$77,512

I-STiCK: Implementing and Sustaining Transition in Care Innovations for Youth using Knowledge Translation Interventions

Co-investigatorCIHR2024Project Grant

Principal investigators: Cassidy, Christine E; Flynn, Rachel; Pidduck, Jacklynn

Keywords: Child And Youth Health; Implementation; Mixed Methods Research; Realist Evaluation; Sustainability; Transitions In Care

$367,200

Disability and Access to Fertility Preservation in Adolescent and Young Adult Cancer Patients

Co-investigatorCIHR2024Operating Grant: Data Analysis Using Existing CDN Databases and Cohorts

Principal investigators: Brown, Hilary; Mahar, Alyson L

Keywords: Adolescents And Young Adults; Cancer; Disability; Fertility Preservation; Reproductive Health Equity

$74,864

Maternal Attention Deficit Hyperactivity Disorder (m-ADHD): Mental Health, Pregnancy and Infant Outcomes

Co-investigatorCIHR2023Project Grant

Principal investigators: Vigod, Simone N; Brown, Hilary; Zipursky, Jonathan S

Keywords: Adhd; Postpartum; Pregnancy

$604,352

From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.

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Alene Toulany

Research

Latest papers

Latest funding

A Systematic Review of the Content Validity of Self-Management Outcome Measurement Instruments for Youth With Multiple Sclerosis Transitioning to Adult Care

Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families

Maternal attention deficit hyperactivity disorder and adverse obstetrical and perinatal outcomes: A population-based cohort study in Ontario, Canada.

Attention-deficit hyperactivity disorder and perinatal mental illness: a population-based study.

CMC-ID: identifying children and youth with medical complexity using an electronic health record.

Knowledge Translation Interventions for Youth Health Care Transitions: Protocol for a Realist Review.

Screens and Teens: A youth participatory action research approach to developing a survey to assess sexual health risks in the digital age.

CONSORT-Children and Adolescents (CONSORT-C) 2026 extension statement: enhancing the reporting and impact of paediatric randomised trials.

SPIRIT-Children and Adolescents (SPIRIT-C) 2026 extension statement: enhancing the reporting and usefulness of paediatric randomised trial protocols.

CONSORT-Children and Adolescents (CONSORT-C) 2026 Extension Statement: Enhancing the Reporting and Impact of Pediatric Randomized Trials.

Mapping the Journey for Youth Transitioning to Adult Care

Frequent collaborators

Eyal Cohen

Kimberly Courtney

Gina Dimitropoulos

Astrid Guttmann

Lisa Hartling

Paul Kurdyak

Martin Offringa

David Moher

An-Wen Chan

Thierry Lacaze-Masmonteil

Maureen Smith

Ashley Vandermorris

Jill Hamilton

Natasha Saunders

Jacklynn Pidduck

Simone Vigod

Kristin Cleverley

Sarah Munce

Melanie Penner

Jan Willem Gorter

Brooke Allemang

Purnima Sundar

Sanober Diaz

Geetha Mukerji

Gina Dimitropoulos

Kimberly Moran

Julia Orkin

Marcia Finlayson

Mario Cappelli

Indra Narang

Andrea Knight

Clementine Jarrett

Yona Lunsky

Kelly Arbour-Nicitopoulos

Paula Robeson

Anthony Traboulsee

Linda Nguyen

dana arafeh

Jonathan Zipursky

Kuan Liu