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Research
Latest papers
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.
Rheumatology (Oxford, England) · 2023 · first author
The Effectiveness of Combining Visual Art Activities and Physical Exercise for Older Adults on Well-Being or Quality of Life and Mood: A Scoping Review.
Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2019
Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.
Disability and rehabilitation · 2019
Latest funding
- $967,726
Course and predictors of patient-reported outcomes from systemic sclerosis onset: A Scleroderma Patient-centered Intervention Network Cohort longitudinal study and individual participant data meta-analysis
CIHR · 2025 · Principal investigator
- $100,000
Advantages and Disadvantages of Methods for Engaging People with Lived Experience in Health Research: An Overview of Systematic Reviews
CIHR · 2025 · Co-investigator
- $72,676
Improving Dissemination of Research Results to Patients: The Scleroderma Patient-centred Intervention Network - Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) Trial
CIHR · 2025 · Co-investigator
38 publications.
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.
Kwakkenbos L, Thombs BD, Khanna D, Carrier ME, Baron M, Furst DE, Gottesman K, van den Hoogen F, Malcarne VL, Mayes MD, Mouthon L, Nielson WR, Poiraudeau S, Riggs R, Sauvé M, Wigley F, Hudson M, Bartlett SJ
The Effectiveness of Combining Visual Art Activities and Physical Exercise for Older Adults on Well-Being or Quality of Life and Mood: A Scoping Review.
Roswiyani R, Kwakkenbos L, Spijker J, Witteman CLM
Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.
Gumuchian ST, Delisle VC, Kwakkenbos L, Pépin M, Carrier ME, Malcarne VL, Peláez S, El-Baalbaki G, Thombs BD, Scleroderma Support Group Project Advisory Team
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts
Dougherty DH, Kwakkenbos L, Carrier M-E, Salazar G, Assassi S, Baron M, Bartlett SJ, Furst DE, Gottesman K, van den Hoogen F
Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study
Azar M, Rice DB, Kwakkenbos L, Carrier M-E, Shrier I, Bartlett SJ, Hudson M, Mouthon L, Poiraudeau S, van den Ende CHM
Validation of the Social Appearance Anxiety Scale in Patients With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study
Mills SD, Kwakkenbos L, Carrier M, Gholizadeh S, Fox RS, Jewett LR, Gottesman K, Roesch SC, Thombs BD, Malcarne VL
Reliability and Validity of Three Versions of the Brief Fear of Negative Evaluation Scale in Patients With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study
Fox RS, Kwakkenbos L, Carrier M, Mills SD, Gholizadeh S, Jewett LR, Roesch SC, Merz EL, Assassi S, Furst DE
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND): Study protocol
Carrier M-E, Kwakkenbos L, Boutron I, Welling J, Sauve M, van den Ende C, Schouffoer AA, Hudson M, Thombs BD, Mouthon L
Validation of the Social Interaction Anxiety Scale in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort study
Gholizadeh S, Kwakkenbos L, Carrier M-E, Mills SD, Fox RS, Jewett LR, Gottesman K, Roesch S, Thombs BD, Malcarne VL
Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating ‘not applicable’ responses as missing data: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study
Merz EL, Kwakkenbos L, Carrier M-E, Gholizadeh S, Mills SD, Fox RS, Jewett LR, Williamson H, Harcourt D, Assassi S
Course and predictors of patient-reported outcomes from systemic sclerosis onset: A Scleroderma Patient-centered Intervention Network Cohort longitudinal study and individual participant data meta-analysis
Principal investigators: Thombs, Brett D; Bartlett, Susan J; Benedetti, Andrea; Guillot, Geneviève; Kwakkenbos, Linda
Keywords: Individual Participant Data Meta-Analysis; Longitudinal Cohort; Patient Engagement; Patient-Reported Outcomes; Scleroderma; Systemic Sclerosis
Advantages and Disadvantages of Methods for Engaging People with Lived Experience in Health Research: An Overview of Systematic Reviews
Principal investigators: Rice, Danielle B; Thombs, Brett D
Keywords: Applied Health Research; Chronic And Rare Diseases; Evidence Synthesis; Knowledge Translation; Musculoskeletal Diseases; Overview Of Reviews; Patient And Citizen Engagement; Patient-Oriented Research; Scleroderma; Systemic Sclerosis
Improving Dissemination of Research Results to Patients: The Scleroderma Patient-centred Intervention Network - Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) Trial
Principal investigators: Thombs, Brett D; Benedetti, Andrea; Wurz, Amanda J
Keywords: Integrated Knowledge Translation; Knowledge Translation; Patient And Public Engagement; Patient-Oriented Research; Patient-Researcher Co-Presentation; Qualitative Research; Randomized Controlled Trials; Research Dissemination; Scleroderma; Systemic Sclerosis
A Patient-Researcher Partnership to Support Mental Health among People with a Rare Autoimmune Disease during COVID-19: the Scleroderma Patient-centered Intervention Network COVID-19 Home-isolation Activities Together (SPIN-CHAT) Program and Trial.
Principal investigators: Wurz, Amanda J; Thombs, Brett D
Keywords: Knowledge Translation; Mental Health; Patient Engagement; People With Lived Experience; Rare Disease; Scleroderma; Stakeholder Collaboration; Systemic Sclerosis
Enhancing Patient Engagement in Scleroderma Research: A Series of Cohort-Based Randomized Controlled Trials of Tools to Improve Communication of Research Results
Principal investigators: Thombs, Brett D; Hoa, Sabrina A; Lawrie-Jones, Amanda; Rice, Danielle B; Sauve, Maureen
Keywords: Knowledge Translation Tools; Patient And Citizen Engagement; Patient-Oriented Research; Randomized Controlled Trials; Research Dissemination; Systemic Sclerosis And Scleroderma
Towards Understanding Pain Sources, Patterns, and Barriers to Effective Management in Systemic Sclerosis: A Patient-Researcher Partnership
Principal investigators: Thombs, Brett D; Nassar, Elsa-Lynn
Keywords: Assessment; Autoimmune Disease; Connective Tissue Disease; Pain; Patient Engagement; Rare Disease; Scleroderma; Systemic Sclerosis
Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
Principal investigators: Thombs, Brett D; Nassar, Elsa-Lynn
Keywords: Patient Engagement; Patient-Oriented Research; Rare Diseases; Scleroderma; Systemic Sclerosis
Mental health in people at risk from COVID-19 due to a pre-existing medical condition: longitudinal study of risk factors, outcomes, and the role of vaccination
Principal investigators: Thombs, Brett D; Benedetti, Andrea
Keywords: Cohort; Covid-19; Mental-Health; Pandemic; Psychological Outcomes; Systemic Sclerosis; Vulnerable Populations
Identification of Factors to Improve Effectiveness and Implementation of a Multi-faceted COVID-19 Mental Health Intervention: Follow-up to the SPIN-CHAT Trial
Principal investigators: Thombs, Brett D; Benedetti, Andrea; Culos-Reed, S.Nicole; Kwakkenbos, Linda
Keywords: Anxiety; Covid-19; Inductive-Deductive Approach; Mental Health; Multiple Perspectives; Pre-Existing Conditions; Qualitative Inquiry; Randomized Controlled Trial; Scleroderma; Vulnerable Population
Partially Nested Randomized Controlled Trial to Evaluate the Effectiveness of the Scleroderma Patient-centered Intervention Network COVID-19 Home-isolation Activities Together (SPIN-CHAT) Program to Reduce Anxiety among Vulnerable Persons with a Pre-existing Medical Condition
Principal investigators: Thombs, Brett D; Benedetti, Andrea; Kwakkenbos, Linda
Keywords: Anxiety; Covid-19; Mental Health; Pre-Existing Conditions; Randomized Controlled Trial; Scleroderma; Vulnerable Population
From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.
Frequent collaborators
- Marie Hudson and Murray Baron: 134 shared papers
- Nader Khalidi and Margaret Larche: 89 shared papers
- Nader Khalidi and Marie Hudson: 58 shared papers
- Nader Khalidi and Murray Baron: 56 shared papers
- Margaret Larche and Marie Hudson: 33 shared papers
- Margaret Larche and Murray Baron: 31 shared papers
- Marie Hudson and Janet Pope: 21 shared papers
- Murray Baron and Janet Pope: 19 shared papers
- Marie Hudson and Linda Kwakkenbos: 17 shared papers
- Nader Khalidi and Janet Pope: 14 shared papers
- Murray Baron and Linda Kwakkenbos: 13 shared papers
- Nader Khalidi and Linda Kwakkenbos: 10 shared papers
- Danielle Rice and Marie Hudson: 10 shared papers
- Margaret Larche and Linda Kwakkenbos: 9 shared papers
- Danielle Rice and Margaret Larche: 8 shared papers
- Nader Khalidi and Danielle Rice: 7 shared papers
- Marie Hudson and Ghassan El-Baalbaki: 6 shared papers
- Danielle Rice and Ghassan El-Baalbaki: 4 shared papers
- Nader Khalidi and Ghassan El-Baalbaki: 3 shared papers
- Danielle Rice and Brett Thombs: 2 shared papers
- Danielle Rice and Linda Kwakkenbos: 2 shared papers
- Brett Thombs and Marie Hudson: 2 shared papers
- Marie Hudson and Paul Fortin: 2 shared papers
- Janet Pope and Linda Kwakkenbos: 2 shared papers
- Nader Khalidi and Paul Fortin: 1 shared paper
- Margaret Larche and Paul Fortin: 1 shared paper
- Brett Thombs and Murray Baron: 1 shared paper
- Brett Thombs and Linda Kwakkenbos: 1 shared paper
- Paul Fortin and Linda Kwakkenbos: 1 shared paper
- Ghassan El-Baalbaki and Linda Kwakkenbos: 1 shared paper
- Psychiatry
- Medicine
- Rheumatology
- Psychiatry & Behavioural Neurosciences
- Department of Epidemiology and Biostatistics
Co-authors at McGill University, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.
Marie Hudson
Psychiatry
17 shared papers, latest 2018
Murray Baron
Rheumatology
13 shared papers, latest 2023
Nader Khalidi
Medicine
10 shared papers, latest 2018
Margaret Larche
Medicine
9 shared papers, latest 2018
Danielle Rice
Psychiatry & Behavioural Neurosciences
2 shared papers, latest 2018
Janet Pope
Department of Epidemiology and Biostatistics
2 shared papers, latest 2018
Brett Thombs
Psychiatry
1 shared papers, latest 2018
Paul Fortin
Medicine
1 shared papers, latest 2018
Ghassan El-Baalbaki
Psychiatry
1 shared papers, latest 2018
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