Karen Cook, Athabasca University

Research

Collaborative Participatory Action Research Concept Mapping Medically Fragile And Vulnerable Populations Mixed Methods Palliative And Hospice Care Palliative Approach To Care Transition From Paediatric To Adult Services Young Adults With Life Threatening Conditions

Latest papers

Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families
Child: Care, Health and Development · 2026
Death talk and access gaps: applying a personalist lens to address inequities for children with complex conditions at the end of life.
Monash bioethics review · 2025 · senior author
Exploring What Motivates Parents of Children Living With Medical Complexity to Participate in Research.
Child: care, health and development · 2024

All 5 publications

Latest funding

Bridging the Gap: A Palliative Approach for Young Adults with Life Threatening Conditions
CIHR · 2015 · Nominated PI
$14,849
Evaluating the Circle of Security relationship-based parenting program with mothers and fathers of typically developing children and of children with complex health needs: An interdisciplinary research and practice collaboration to build parents' reflective capacities in multiple service settings in Canada, starting in Alberta
CIHR · 2014 · Principal investigator
$12,500

All 2 grants and awards

5 publications.

01

Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families

Li L, Gorter JW, Cook K, Toulany A, Robeson P, Geboers J, Kassam‐Lallani D, Grahovac D, Bogossian A, Rojas RG

Child: Care, Health and Development2026

DOI: 10.1111/cch.70294

02

Death talk and access gaps: applying a personalist lens to address inequities for children with complex conditions at the end of life.

Lamb CM, Cook K

Monash bioethics review2025Senior author

DOI: 10.1007/s40592-025-00246-1 PMID: 40332673

03

Exploring What Motivates Parents of Children Living With Medical Complexity to Participate in Research.

Kim L, Hermansen AM, Cook K, Siden H

Child: care, health and development2024

DOI: 10.1111/cch.13331 PMID: 39300755

04

Regulating During Crisis: A Qualitative Comparative Case Study of Nursing Regulatory Responses to the COVID-19 Pandemic.

Leslie K, Myles S, Stahlke S, Schiller CJ, Shelley JJ, Cook K, Stephens J, Nelson S

Journal of nursing regulation2023

DOI: 10.1016/s2155-8256(23)00066-2 PMID: 37035776

05

The philosophy of Hans-Georg Gadamer: An exemplar of the complicated relationship between philosophy and nursing practice.

Corcoran L, Cook K

Nursing inquiry2023Senior author

DOI: 10.1111/nin.12509 PMID: 35715885

Bridging the Gap: A Palliative Approach for Young Adults with Life Threatening Conditions

Nominated PICIHR2015Patient-Oriented Research Collaboration Grants

Principal investigators: Cook, Karen A

Keywords: Collaborative Participatory Action Research; Concept Mapping; Medically Fragile And Vulnerable Populations; Mixed Methods; Palliative And Hospice Care; Palliative Approach To Care; Transition From Paediatric To Adult Services; Young Adults With Life Threatening Conditions

$14,849

Evaluating the Circle of Security relationship-based parenting program with mothers and fathers of typically developing children and of children with complex health needs: An interdisciplinary research and practice collaboration to build parents' reflective capacities in multiple service settings in Canada, starting in Alberta

Principal investigatorCIHR2014Planning and Dissemination Grant - Institute Community Support

Principal investigators: Rempel, Gwendolyn R; Cook, Karen F

Keywords: Attachment; Circle Of Security© Parenting Program; Family; Health Child Development; Intervention Research; Parent Reflective Functioning; Parenting; Relationship-Based Parenting; Urban And Rural Settings; Wait List Control Group

$12,500

From CIHR, NSERC and SSHRC funding decisions: CIHR since 2008, NSERC since 1991 and SSHRC since 1998, including their latest published competition results.

Frequent collaborators

Pediatrics
Nursing
Regenerative Medicine
Other

Co-authors at Athabasca University, colored by department. Thicker lines mean more shared papers; select anyone to open their profile and their own map.

Harold Siden

Pediatrics

1 shared papers, latest 2024

Alene Toulany

Pediatrics

1 shared papers, latest 2026

Kathleen Leslie

Nursing

1 shared papers, latest 2023

Paula Robeson

Regenerative Medicine

1 shared papers, latest 2026

Sioban Nelson

Faculty

1 shared papers, latest 2023

Jan Willem Gorter

Pediatrics

1 shared papers, latest 2026

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Applying for

Paper to mention

Subject: Prospective PhD student: Collaborative Participatory Action Research Dear Professor Cook, My name is [your name], and I am a [your current degree or role] at [your institution]. I am applying for a PhD position starting in [term and year]. I read your paper "Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families" (2026), and it connects closely to my own work on [your research topic]. [One or two sentences on what you did and what you learned.] Are you accepting new PhD students for [term and year]? I have attached my CV and transcripts, and I would be glad to talk at a time that suits you. Thank you for your time. Kind regards, [your name]